The Washington End-of-Life Coalition 2015 Annual Meeting
Friday, Nov. 13
9 a.m.–3:30 p.m.
DoubleTree by Hilton Hotel Seattle Airport
Dr. Ira Byock, leading palliative care physician, author, and public advocate for improving care through the end of life, is the featured presenter at this year’s Washington End-of-Life Coalition annual meeting, Friday, Nov. 13 at the DoubleTree by Hilton Hotel Seattle Airport. Dr. Byock will join coalition leaders and community representatives from across the state to present a full-day program addressing a culture on the brink of a revolution in the way we think and care for those at the end of life.
The meeting will also feature short presentations highlighting a selection of innovative and inspiring end-of-life and advance care planning efforts happening across the state. Also included will be updates on the Honoring Choices Pacific Northwest initiative as well as state and national efforts around the Physician Orders for Life-Sustaining Treatment (POLST).
Co-sponsored by the state medical (WSMA) and hospital (WSHA) associations, the Washington End-of-Life Coalition is made up of a broad-based cross-section of individuals and organizations across the state interested in bettering end-of-life care. The coalition’s annual meeting traditionally provides an excellent opportunity to network with colleagues who share an interest in palliative, geriatric, spiritual and other end-of-life issues.
FRIDAY, NOVEMBER 13
|Updates from around the state
- Honoring Choices Pacific Northwest
- National end-of-life updates
Compassion & Choices
|SHORT PRESENTATION –
Be My Guest: Death over Dinner – Rita Mark, RN, BSN
|SHORT PRESENTATION –
Respecting Choices Wenatchee – Makrina Shanbour, MD and Ginny Heinitz, RN, BSN, CHPN
|SHORT PRESENTATION –
Faith Community Nursing as an Effective Liaison between the Community and Health Care – Gretchen Brauer-Rieke, RN, MSN
|SHORT PRESENTATION –
Living Well Through the End of Your Life – Collective Impact Advance Care Planning: Educating, Empowering and Inspiring a Region – Paula S. Beatty, RN, BSN, MPA
Well-being Through the End of Life: Clinical & Cultural Leadership for the 21st Century – Ira Byock, MD
Keynote presentation Well-being Through the End of Life: Clinical & Cultural Leadership for the 21st Century
American health care focuses on diagnosing and treating medical conditions, but gives relatively little attention to the personal experience of seriously ill people and their families. Most people want to drift gently from life, optimally at home, surrounded by people they love. Epidemiological and health service studies paint an alarmingly different picture—a high proportion of people are dying in ICUs, hospitals and nursing facilities, and a relatively small percentage are dying at home.
A fundamental shift is needed in our caring approach to seriously ill people and their families. Illness and dying are fundamentally personal.
Dr. Byock’s presentation will explore the essential components of shared decision-making and quality clinical care in the context of serious illness. He will define a framework for evaluation, care planning and therapeutic intervention that addresses the lived experiences, values, preferences and priorities of patients and families affected by life-threatening medical conditions; one that can preserve opportunities for people to experience a sense of well-being concomitant with the stresses of illness, caregiving and dying, and one that is essential to providing the best person-centered care.
About Dr. Byock
Dr. Byock is one of the nation’s foremost experts in palliative care. His books “Dying Well,” “The Four Things that Matter Most” and “The Best Care Possible,” have become touchstones for the practice of hospice, palliative and end-of-life care. He is the executive director and chief medical officer for the Institute for Human Caring of Providence Health and Services, a 35-hospital health system serving communities across five western states, including Washington. Dr. Byock advances efforts to measure, monitor and improve whole-person health care systemwide. He is a practicing physician and is based in Torrance, CA.
Be My Guest: Death over Dinner
Presented by Rita Mark, MN, RN
Death over Dinner is gaining popularity as an alternative method to engage people in conversations related to advance care planning and end-of-life decision making. This presentation will focus on the decisions and details that are necessary to create an environment that encourages open and honest discussions on an often avoided topic. Engaging patients in advance care planning and especially conversations related to their treatment preferences is one of the best methods to involve the patient in their own care decisions, and it has been shown to promote healthier outcomes and reduce health care spending.
Rita Mark, MN, RN is RN liaison and patient experience coordinator at Swedish Edmonds. In addition to her role of working with staff to assure patients receive quality care, she also is a member of the hospital ethics committee and end-of-life subcommittee. Rita helps coordinate the Swedish Edmonds advance care planning workshops, which are unique to the Swedish Edmonds campus. She completed her MN degree at UW Bothell June 2015, with her final project focused on ethics and end-of-life planning.
Respecting Choices Wenatchee
Presented by Makrina Shanbour, MD and Ginny Heinitz, RN, BSN CHPN
Respecting Choices Wenatchee is a community-wide initiative to improve conversations about advance care planning and specifically POLST throughout our community. A grant from Cambia Foundation supported the training of facilitators at Wenatchee Valley Medical Center, a home health agency, a nursing home, subacute rehab unit, community clinic and outpatient oncology and pulmonary clinics to talk to patients who have 12 months or less to live and their families about end-of-life wishes. The project involved extensive coordination with medical records departments to make it easier to find advance care documents in the EMR as well as community outreach presentations that were well-received. The initiative’s goal is to expand the initiative to primary care settings across the organization and community.
Respecting Choices Wenatchee has been working on developing an outpatient palliative care program with one RN who is working in pulmonary, neurology and oncology and managing a large panel of patients. The nurse helps coordinate care between physicians and home health-hospice, helps walk the patient and family through the possible course of disease and helps with advance care planning. The goal is to expand these outpatient palliative care services to other service lines, including internal medicine and cardiology.
About Dr. Shanbour
Makrina Shanbour, MD is board certified in internal medicine and is a hospitalist with Central Washington Hospital & Clinics in Wenatchee.
Ginny Heinitz, RN, BSN CHPN, provides outpatient palliative care at Confluence Health in Wenatchee. She served as a hospice nurse for 25 years. As Ginny saw the length of stay shorten for hospice patients, she became interested in educating the public about hospice and the “what ifs” of life before they reached the end of their life. She was influential in starting both the inpatient and outpatient palliative care programs at Confluence Health and has helped bring Respecting Choices to Wenatchee, serving as the first program coordinator. She incorporates her work with Respecting Choices and palliative care in a very popular community talk “Planning for the Future so You Can Live in the Now.” She has a passion for allowing the patient’s voice to be heard so that we can provide the right care at the right time, based on each individual’s story and values.
Faith Community Nursing as an Effective Liaison between the Community and Health Care
Presented by Gretchen Brauer-Rieke, RN, MSN
Faith community nurses (FCN, also known as parish nurses) are nurses embedded into the social fabric of faith communities usually volunteering their time and skills with members of that community. Given the extended time and personal attention provided by FCN with whom they have a relationship, congregants may feel more comfortable and open with FCN, receptive to education and support. How, then, can FCN help members of their faith communities prepare for the end of life? We will look at a new model of collaboration between a major health care delivery system and Faith Community Nursing/Health Ministries Northwest to provide training for FCN to bring end-of-life education into their faith communities, support congregants in making advance plans for end-of-life decisions, and examine the benefits and barriers to effective end-of-life work in our faith communities.
Gretchen Brauer-Rieke, RN, MSN is a certified advance care planning facilitator and founder of CodaConversations (http://codaconversations.com/) who has presented extensively in Oregon and Washington on end-of-life planning. She is the author of In Advance: A Practical Guide to Making Your Own End-of-Life Healthcare Decisions. A former nurse-midwife, Gretchen is passionate about maintaining meaning and sacredness in the natural processes of both birth and death. She has been teaming up with Faith Community Nursing/Health Ministries Northwest to provide education and training for faith community nurses, equipping them for effective end-of-life work within their congregations.
What’s Your ACP? Collective Impact Advance Care Planning: Educating, Empowering and Transforming a Community
Presented by Paula Beatty
In 2012, the Snohomish County Health Leadership Coalition formed as a countywide collaborative among business, health care, education, social service and faith organizations. Its shared community mission is to foster community vitality, competitiveness and prosperity through better health and health care value. Collective impact is the harnessing of cross-sector leadership and resources to achieve critical goals, and SHCLC is applying this strategy to advance care planning. The unique attributes of this approach can lead to long-term sustainability and broad replication. The coalition sponsors an ACP initiative that engages these sectors to educate, empower and inspire both citizens and medical staff to initiate conversations about advance care planning and end-of-life care, document these conversations, and honor these documents. The presentation will discuss and celebrate our process and results to date in addition to next steps.
Paula Beatty, RN is the strategic program manager for the Snohomish County Health Leadership Coalition’s advance care planning initiative. She has spent a significant portion of her nursing career working in home health, hospice and palliative care. Paula is the former executive director for Providence Hospice and Home Care of Snohomish County where she led teams in the development of nationally recognized palliative care and bereavement programs. In addition to her leadership role with the Snohomish County Health Leadership Coalition, Paula provides nutrition, exercise and lifestyle education consulting.
- Identify the fundamental components of quality clinical care in the context of serious illness.
- Define the elements that make up shared decision-making.
- Summarize the concepts and ideas which define dying as a critical time in the life of individuals and families.
- Identify a conceptual model and terminology of human development, applied to the evaluation, care planning and therapeutic intervention pertinent to psycho-social and spiritual suffering and resolution related to dying, and describe how this framework presents opportunities for well-being that can occur concomitant with incurable illness and dying.
- Give examples of the concept of “community” as a process on a macro geographic level and on a micro level.
The WSMA is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
The WSMA designates this live activity for a maximum of 3.75 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
This activity meets the criteria for up to 3.75 hours of Category I CME credit to satisfy the relicensure requirements of the Washington State Medical Quality Assurance Commission.
This workshop has been approved for 3.75 CEUs by the Washington Chapter, National Association of Social Workers (NASW) for licensed social workers, licensed marriage and family therapists and licensed mental health counselors. Your provider number is #1975-391.
The fee for exhibitors is $200 and will include: one 6' skirted table (fabric draping), two chairs and company representative(s) name badges. To register as an exhibitor, download an application form and submit with payment. The exhibit fee includes meeting registration fee for one exhibit manager. If other company representatives aside from the exhibit manager would like to attend the meeting, they'll need to register separately and pay the general registration fee.
Booth assignments will be determined by the event organizers. Cancellations received on or after Oct. 31 will be charged a $25 service fee. The deadline for exhibitor applications is Monday, Nov. 2. Exhibitor space is limited, so apply today.
If you have any questions about exhibiting at the meeting, contact Graham Short at (800) 551-0612, or email@example.com.
In order to keep our registration fees affordable for all, we are looking for some partners in offering the meeting this year. If you and/or your organization would like to help us make this meeting possible, contact Graham Short at (800) 551-0612, or firstname.lastname@example.org.
$250 Bronze Sponsor
Name acknowledgement in meeting program, name acknowledged on the WEOLC website for six months and supporter of the Annual Meeting.
$500 Silver Sponsor
Name acknowledgement in meeting program, logo on the WEOLC website for six months, acknowledged as sponsor for the Annual Meeting breakfast.
$1000 Gold Sponsor
Logo acknowledgement in meeting program, logo on the WEOLC website for six months, acknowledged as sponsor for the Annual Meeting and opportunity to introduce keynote speaker.
Advance online registration is requested. You can also register by sending us a paper copy. Register by Oct. 15 to receive the early-bird rate of $80. After Oct. 15, the rate is $95. Additional fees required for CME ($50) or CEU ($25) credit. Walk-in registration will be available ($95). If you have any questions about registration, please contact Abby at the WSMA front office at (206) 441-9762, (800) 552-0612 or email@example.com.